April 18th updates

Connor has a new neuro dr appointment on May 22. I tried getting him in with 3 other Universities and children hospitals and I was told that they aren't taking any new neuro cases. We finally found one that will see us. Just don't know if we are going to get anywhere with this one either. We also got a call from our pediatrician and she told us that the blood work we had done on Connor came back as severely anemic. We have to give him some very specific iron supplement 1 teaspoon 2X/day. That is going to be hell. He freaks out any time you try to put something in his mouth. Then we have to brush his teeth or wipe them off with a cloth cause the stuff will stain his teeth. So, that is another fight. If this doesn't improve things in 3 months he will have to go for more tests to see what is causing this.

We had to have the behavioral therapist come in to the house so that we could figure out the best way to deal with his tantrums. They are getting real bad with the violence escalating. He is not a light child and with my disabilities I am having a hard time protecting Connor and myself.We had to figure out a way to safely restrain him while he is going through the worse of it. I am covered in bruises from his melt downs. He is covered in bruises from his melt downs. He takes toy planes and slams them into his head over and over again. It is scary and heart breaking. His therapist is now calling in the same woman because Connor's speech has gone way down and he is going into his own world much more often. We need help trying to figure out why and what to do about it. We have set up an eval for Connor to start Occupational therapy as an out patient along with what he is getting now. He needs more than he is getting and his therapist now feels that with early intervention they approach things developmentally and as an out patient they will treat it more from a medical stand point. We are all hoping that this helps. Only problem with that is that we don't have the eval until 8/24.

His new developmental scores are in but I don't have them with me. I will post them next time I write. I will also get on here as soon as I can after our neuro appointment in May. God I hope we get some answers and this doesn't turn into another big let down. Thank you all for your prayers and your caring